IVUN

INTERNATIONAL VENTILATOR USERS NETWORK

 

an affiliate of Post-Polio Health International

CONNECTING

VENTILATOR USERS,

HEALTH PROFESSIONALS,

AND INDUSTRY

VENTILATOR-ASSISTED LIVING

PAST ISSUES BY TOPIC

CAMPING/CAMPS

From Camper to Counselor at CHAMP Camp (Vol. 29, No. 2)

Young Vent User Is a Happy Camper (Vol. 26, No. 1)

VACC Camp is Paradise for Kids with Ventilators (Vol. 25, No. 1)

Our Camp Inspiration at Double H Ranch Experience (Vol. 24, No. 1)

Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

A Treehouse for Everyone (Vol. 19, No. 1)

Vent Kids of Alabama Support Group (Vol. 18, No. 3)

Fresh Air Camp (Vol. 15, No. 4)

Camping with a Ventilator (Vol. 15, No. 2)

 

CANADA

Tubes Will Not Defeat Me (Vol. 29, No. 6)

Improving Long-term Respiratory Care in Ontario, Canada (Vol. 23, No. 3)

My Experience with Setting Up Day-time Ventilation (Vol. 23, No. 3)

Hospital Experiences and Observations (Vol. 23, No. 1)

Pearson's Respiratory Outreach Program Moves into Community (Vol. 15, No. 4)

Ontario's Ventilator Equipment Pool (Vol. 14, No. 2)

 

CARBON DIOXIDE RETENTION

Demystifying End Tidal CO2 (Vol. 27, No. 3)

 

CAREGIVERS

Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

Emergency Respite Care (Vol. 20, No. 1)

Development of RespiteMatch.com (Vol. 19, No. 1)

 

CENTRAL CONGENITAL HYPOVENTILATION SYNDROME (CCHS)

Goal: Living as Independently as Possible (Vol. 29, No. 5)

From Around the Network (Vol. 22, No. 4)

CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4)

CCHS Update: Matt Stone (Vol. 11, No. 2)

CCHS Registry (Vol. 11, No. 2)

CCHS Data (Vol. 10, No. 2)

 

CENTRONUCLEAR MYOPATHY

Tubes Will Not Defeat Me (Vol. 29, No. 6)

 

CHARCOT-MARIE-TOOTH

Charcot-Marie-Tooth: A "Breath Taking" Reality (Vol. 16, No. 3)

 

CHILDREN

“We can now go outdoors all day ... " (Vol. 28, No. 4)

National Program in Chile Improves Quality of Life for Vent-Assisted Children (Vol. 26, No. 5)

From Around the Network (Vol. 26, No. 4)

Young Vent User Is a Happy Camper (Vol. 26, No. 1)

VACC Camp is Paradise for Kids with Ventilators (Vol. 25, No. 1)

Kaine Rodriguez (Vol. 24, No. 5)

A Different Kind of Booster (Vol. 23, No. 1)

Crafting in Cardboard (Vol. 22, No. 4)

From Around the Network (Vol. 22, No. 3)

Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)

The Experiences of Families with Ventilator-Assisted Children at Home (Vol. 19, No. 2)

A Treehouse for Everyone (Vol. 19, No. 1)

Home Care for Children in Holland (Vol. 18, No. 4)

Vent Kids of Alabama Support Group (Vol. 18, No. 3)

Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)

Arizona Respiratory Center Receives Grant (Vol. 18, No. 1)

Traveling with Technology-Assisted Children (Vol. 17, No. 3)

Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)

Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)

Living with SMA in Hong Kong (Vol. 16, No. 1)

Fresh Air Camp (Vol. 15, No. 4)

German Pediatric Masks (Vol. 15, No. 3)

 Pediatric Noninvasive Ventilation (Vol. 15, No. 3)

The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)

Improving Quality of Life (Vol. 14, No. 4)

Australian Paediatric Ventilator Program (Vol. 14, No. 3)

IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)

Home Care and Mechanical Ventilation for Children in Thailand (Vol. 14, No. 1)

Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4)

A Family Home, Not a Nursing Home (Vol. 13, No. 2)

The Baku Baku Club: Education and Ventilator-Assisted Children in Japan; Saki's Story (Vol. 12, No. 4)

An Israeli Experience (Vol. 12, No. 4)

Longterm Ventilation for Children in the United Kingdom (Vol. 12, No. 3)

From the Desk of David-Ecker-Russ (Vol. 12, No. 1)

Passy-Muir Valve Helps Wean from Tracheostomy (Vol. 10, No. 1)

Children and Teens as Ventilator Users (Vol. 9, No. 1)

 

CHILE

National Program in Chile Improves Quality of Life for Vent-Assisted Children (Vol. 26, No. 5)

 
CHRONIC OBSTRUCTIVE PULMONARY DISEASE (COPD)

Hospitals Testing New Procedures for Lung Disease without Major Surgery (Vol. 28, No. 2)

Understanding Chronic Obstructive Pulmonary Disease (COPD): Part I (Vol. 26, No. 3)

Understanding Chronic Obstructive Pulmonary Disease (COPD): Part II (Vol. 26, No. 4)

Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)

 

COMMUNICATION

Letter to the Editor (Vol. 18, No. 2)

Passy-Muir Speaking Valve: Improving Voice in Children and So Much More(Vol. 18, No. 1)
Let's Hear It for Free Speech! (Vol. 13, No. 1)

Speak to Me ... Better (Vol. 12, No. 4)

Tracheal Toilet and Speech (Vol. 10, No. 1)

The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2)

 
COPD (SEE CHRONIC OBSTRUCTIVE PULMONARY DISEASE)

 

COR PULMONALE

From Cor Pulmonale to Getting a Second Chance (Vol. 25, No. 6)

What is Cor Pulmonale? (Vol. 25, No. 6)

 

COUGH

New CoughAssist Model Approved (Vol. 27, No. 1)

Airway Clearance and Lung Volume Recruitment for Individuals with Neuromuscular Disease (Vol. 25, No. 4)

Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

 Post-Polio, Swallowing, and Cough (Vol. 15, No. 3)

Assisted Cough: Benefits and Techniques (Vol. 12, No. 1)

Monitoring Respiratory Function (Vol. 11, No. 2)

Suggestions for Avoiding Respiratory Complications (Vol. 9, No. 2)

 

DENMARK

Program to Coordinate Helper Teams for HMV Users in East Denmark (Vol. 25, No. 6)

Forum on Home Mechanical Ventilation: The Danish Experience (Vol. 11, No. 2)

Danish Observations about American Ventilator Users (Vol. 10, No. 1)

New Danish Custom Nasal Mask (Vol. 10, No. 1)

 

DENTAL WORK

CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4)

 

DIAPHRAGMATIC PACING

From Vent to Diaphragmatic Pacing System: Conclusion (Vol. 25, No. 2)

From Vent to Diaphragmatic Pacing System: Part III (Vol. 24, No. 5)

From Vent to Diaphragmatic Pacing System: Part II (Vol. 24, No. 3)

From Vent to Diaphragmatic Pacing System: Part I (Vol. 24, No. 2)

NeuRx Diaphragm Pacing System (DPS) (Vol. 24, No. 1)

From Around the Network (Vol. 22, No. 3)

Letter to the Editor: DPS System Article Clarified (Vol. 20, No. 4)

The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System (Vol. 20, No. 3)

Phrenic Nerve Pacing (Vol. 17, No. 1)

New Diaphragm Pacing System (Vol. 15, No. 2)

Phrenic Nerve Pacing (Vol. 13, No. 1)

 

DOGS, ASSISTANCE

Ninth International Noninvasive Ventilation Conference:
   "From the ICU to Home," October 2003, Orlando, Florida (Vol. 17, No. 4)

Assistance Dogs for Children with CCHS (Vol. 15, No. 1)

 

EDUCATION

VENTure Think Tank (Vol. 28, No. 4)

Living on Your Own in College and Beyond (Vol. 19, No. 2)

IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)

Schools and Programs for Pediatric Ventilator Users (Vol. 10, No. 2)

 

ENGLAND

Matt King is Pursuing His Dreams (Vol. 24, No. 5)

Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4)

Long-term Ventilation for Children in the United Kingdom (Vol. 12, No. 3)

On Holiday at Netley Waterside House (Vol. 10, No. 1)

 

EQUIPMENT EXCHANGE

Frequently Asked Questions (Vol. 22, No. 3)

IVUN Equipment Exchange: PLV-100s Donated (Vol. 19, No. 1)

IVUN Ventilatory Equipment Exchange (Vol. 18, No. 1)

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IVUN

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314-534-0475

info@ventusers.org