IVUN

INTERNATIONAL VENTILATOR USERS NETWORK

 

an affiliate of Post-Polio Health International

CONNECTING

VENTILATOR USERS,

HEALTH PROFESSIONALS,

AND INDUSTRY

VENTILATOR-ASSISTED LIVING

PAST ISSUES BY TOPIC

NETHERLANDS

Home Care for Children in Holland (Vol. 18, No. 4)

Home Mechanical Ventilation in the Netherlands (Vol. 17, No. 2)

 
NEW ZEALAND

Vent User Starts Powerchair Football Club (Vol. 26, No. 6)

 
NONINVASIVE VENTILATION

Margaret Pfrommer Memorial Lecture (Vol. 29, No. 6)

1953 Ventilation Yields 2015 Fashion (Vol. 29, No. 5)

Caring for Children with Rare Diseases: "NORMAL" is What You Make It

   Part 1: Our Family Situation/Experience (Vol. 29, No. 3)

   Part 2: The Solutions/Resolution and Ventilator-Assisted Living (Vol. 29, No. 4)

Vent User Starts Powerchair Football Club (Vol. 26, No. 6)

Meet Jacob Gapko (Vol. 26, No. 4)

Mouthpiece Ventilation Setup (Vol. 26, No. 4)

Kaine Rodriguez (Vol. 24, No. 5)

Twin Vent Users (Vol. 24, No. 3)

Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 6)

Ask the Experts: Post-polio syndrome (Vol. 24, No. 5)

Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 1)

My Experience with Setting Up Day-time Ventilation (Vol. 23, No. 3)

My Favorite Mask (Vol. 23, No. 1)

Bilevel or volume-cycled ventilation? (Vol. 22, No. 4)

My Favorite Masks (Vol. 22, No. 4)

Ventilator Users and Meditation (Vol. 22, No. 4)

Frequently Asked Questions (Vol. 22, No. 3)

My Favorite Mask: FlexiFit 407™ (Vol. 22, No. 2)

From Around the Network (Vol. 22, No. 1)

Bilevel Ventilation (Vol. 21, No. 2)

Masks, Part II: Noninvasive Interfaces (Vol. 19, No. 3)

Masks: Obtaining a Good Fit, Part I (Vol. 19, No. 2)

PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation (Vol. 18, No. 4)

Mouth Intermittent Positive Pressure Ventilation: An old technique revisited for a "sip" of fresh air (Vol. 18, No. 1)

Noninvasive Ventilation: A History of My Life (Vol. 17, No. 4)

Noninvasive to Trach Ventilation ... and Back Again (Vol. 17, No. 3)

Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)

Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2)

Which Ventilator? Who Decides? (Vol. 17, No. 1)

My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)

On the Road with the Newport HT50 Ventilator (Vol. 16, No. 3)

From Negative to Positive (Vol. 16, No. 2)

Pediatric Noninvasive Ventilation (Vol. 15, No. 3)

Tracheostomy or Noninvasive Ventilation? (Vol. 14, No. 3)

Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users?(Vol. 13, No. 2)

Which Ventilator to Use? (Vol. 12, No. 2)

Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)

Adapting to Masks and BiPAP® (Vol. 11, No. 2)

Noninvasive Ventilation: A Successful Changeover (Vol. 10, No. 1)

 

NONINVASIVE VENTILATION CONFERENCES
Notes from 14th International Conference on Home Mechanical Ventilation and the 5th European Respiratory Care
   Association Congress (Vol. 29, No. 2)

13th International Conference on Noninvasive Ventilation, 2012, Barcelona, Spain (Vol. 26, No. 2)

Breathing and Sleep Symposium II (Vol. 24, No. 6)

Breathing and Sleep Symposium (Vol. 23, No. 4)

The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)

A ventilator user's impressions of a recent hmv meeting (Vol. 21, No. 3)

Ventilator Conference in Lyon (Vol. 19, No. 2)

Ninth International Noninvasive Ventilation Conference: "From the ICU to Home,"
   October 23-25, 2003, Orlando, Florida (Vol. 17, No. 4)

Home Mechanical Ventilation Conference, Lyon, France, 2001 (Vol. 15, No. 2)

Orlando Report: 7th International Conference "Noninvasive Ventilation:
   Across the Spectrum from Critical Care to Home Care" (Vol. 13, No. 2)

Longterm Home Ventilation and Living Independently: The Users' Perspectives (Vol. 9, No. 1)

 

OXYGEN THERAPY

More on Oxygen Use (Vol. 15, No. 4)

Oxygen Is NOT for Hypoventilation in Neuromuscular Disease (Vol. 14, No. 1)

 

PFROMMER AWARD

Pfrommer Award Honors Headley and Fischer (Vol. 28, No. 5)

Ventilator-Assisted Individuals; Integrating Across the Spectrum of Care (Vol. 28, No. 1)

 

PHRENIC NERVE PACING (SEE DIAPHRAGMATIC PACING)
 
PNEUMOBELT

Frequently Asked Questions (Vol. 22, No. 3)

The Pneumobelt: Part of My Noninvasive Ventilation System (Vol. 18, No. 4)

Pneumobelt in Action (Vol. 13, No. 4)

 
POLAND

The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)

 
POMPE DISEASE

Pompe Disease Treatment (Vol. 22, No. 2)

Luke's Progress (Vol. 17, No. 1)

Living with Pompe Disease (Vol. 10, No. 2)

 
PORTA-LUNG

Conversion: Iron Lung to Porta-Lung® (Vol. 12, No. 3)

 

PORTUGAL

Mouth Intermittent Positive Pressure Ventilation: An old technique revisited for a "sip" of fresh air (Vol. 18, No. 1)

Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)

 
POST-POLIO SYNDROME (PPS)

In Pursuit of a New Vent (Vol. 29, No. 6)

All-Too-Typical Email to IVUN (Vol. 28, No. 6)

Sherry Hurst: "I Plan to Celebrate My 100th Birthday!" (Vol. 28, No. 2)

My Continuing Medical Education as a Post-Polio Patient/Physician (Vol. 27, No. 6)

Arriving at Correct Diagnosis, Treatment: A Long and Frustrating Process (Vol. 26, No. 2)

From Cor Pulmonale to Getting a Second Chance (Vol. 25, No. 6)

What is Cor Pulmonale? (Vol. 25, No. 6)

Ask the Experts (Vol. 24, No. 5)

Living with Polio in the 21st Century (Vol. 23, No. 2)

Ventilator Users and Meditation (Vol. 22, No. 4)

Bilevel Ventilation (Vol. 21, No. 2)

Noninvasive Ventilation: A History of My Life (Vol. 17, No. 4)

Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2)

From Negative to Positive (Vol. 16, No. 2)

From Trach to Iron Lung to Cuirass to Mask Ventilation (Vol. 13, No. 3)

Adolf Ratzka Honored (Vol. 13, No. 2)

Conversion: Iron Lung to Porta-Lung™ (Vol. 12, No. 3)

 

POWER FAILURES

Highly Dependent on Power! (Vol. 28, No. 1)

Energy Backup (Vol. 23, No. 1)

Riding Out Hurricane Ike (Vol. 23, No. 1)

Escaping Hurricanes Katrina and Rita (Vol. 20, No. 1)

Extra Security During Emergencies (Vol. 19, No. 1)

Ventilator Backup: Are You Prepared? (Vol. 18, No. 1)

 Choosing a Generator (Vol. 13, No. 3)

When the Power Goes Off (Vol. 12, No. 4)

 

PREGNANCY

Breathing and Pregnancy (Vol. 16, No. 4)

 
QUALITY OF LIFE

VENTure Think Tank (Vol. 28, No. 4)

Ventilator Users Speak (Vol. 28, No. 3)

Vent User Starts Powerchair Football Club (Vol. 26, No. 6)

Meet Jacob Gapko (Vol. 26, No. 4)

Carrie Lucas Fights for the Rights of Disabled Parents (Vol. 25, No. 5)

No Way Out But In: Responding Positively to Chaos with Forgiveness and Grief (Vol. 23, No. 3)

A Life Less Ordinary (Vol. 22, No. 2)

Needed: Independent Living for Ashly (Vol. 22, No. 1)

Social and Ethical Implications of Long-term Ventilation for Men with Muscular Dystrophy (Vol. 21, No. 2)

Independence with a Ventilator: An Interview with Mark Boatman (Vol. 21, No. 1)

IVUN Joins Those Studying Sexual Activity and Chronic Illness (Vol. 20, No. 4)

Enjoying the Arts: Expect the Unexpected (Vol. 20, No. 2)

His Choice: My Life and Her Life: My Caregiving (Vol. 19, No. 3)

From independent living to a nursing home ... and back? (Vol. 18, No. 3)

Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)

A Change of Plans (Vol. 17, No. 4)

Ventilator Users' Perspectives on the Important Elements of Health-Related Quality of Life: Final Report (Vol. 16, No. 3)

Ventilator Users and Health-Related Quality of Life (Vol. 16, No. 1)

Risks (Vol. 15, No. 3)

Breaths of Life (Vol. 15, No. 1)

Improving Quality of Life (clinic for children in Dallas) (Vol. 14, No. 4)

Research Grant to Examine Ventilator Users' Quality of Life (Vol. 14, No. 4)

The Awesome Privilege of Living (Vol. 14, No. 2)

They Just Don't Get It (Vol. 13, No. 3)

Choosing Life, Even on a Ventilator (Vol. 10, No. 2)

 
REIMBURSEMENT, EQUIPMENT

Help Eliminate Competitive Bidding (Vol. 23, No. 4)

From Around the Network (Vol. 23, No. 1)

From Around the Network (Vol. 22, No. 3)

Competitive Bidding: What It May Mean for You (Vol. 22, No. 2)

Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)

Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)

Medicare Changes Payment for RADs (Vol. 20, No. 1)

Which Ventilator? Who Decides? (Vol. 17, No. 1)

Reimbursement for Ventilator Equipment: How It Works (Vol. 17, No. 1)

 Home Medical Equipment Company Profits: Dispelling the Myth (Vol. 15, No. 1)

Bi-Level Positive Pressure Ventilation: New HCFA Policy (Vol. 13, No. 3)

 
RESCUSITATION BAGS

Device to Help Take Charge, Not Chances (Vol. 22, No. 3)

 
RESEARCH FUND

$100,000 Grant Announced at 11th International Conference (Vol. 28, No. 3)

 
RESPIRATORY FAILURE

Ask the Experts (Vol. 25, No. 4)

 
RESPIRATORY INFECTIONS

Ask the Experts (Vol. 25, No. 6)

It's Flu Season (Vol. 23, No. 3)

Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and

   Health Professionals (Vol. 21, No. 4)

Preparing for a Respiratory Emergency (Vol. 18, No. 2)

Treating Bronchitis with H2O (Vol. 17, No. 1)

Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

Respiratory Health Checklist (Vol. 15, No. 2)

 

SAFETY

Highly Dependent on Power! (Vol. 28, No. 1)

Energy Backup (Vol. 23, No. 1)

Take Charge, Not Chances: In Practice (Vol. 22, No. 1)

Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and Health        

    Professionals (Vol. 21, No. 4)

Safety Issue Generates Practical Solutions (Vol. 21, No. 2)

 
SEXUALITY

IVUN Joins Those Studying Sexual Activity and Chronic Illness (Vol. 20, No. 4)

 
SCOLIOSIS

Surpassing the Teenage Trach Years (Vol. 22, No. 3)

 
SCOTLAND

Home Is Best (Vol. 19, No. 2)

 
SURGERY

Traumatic to be Conscious during Ventilation Treatment (Vol. 26, No. 1)

 
SKYDIVING
Skydiving Quad (Vol. 14, No. 3)
 
SLEEP APNEA

Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment (Vol. 19, No. 3)

Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)

Which Ventilator to Use? (Vol. 12, No. 2)

 
SLEEP STUDIES

Ask The Experts (Vol. 25, No. 1)

More on Sleep Studies (Vol. 16, No. 1)

Sleep Studies: At Home or in the Lab? (Vol. 15, No. 4)

 
SMA (SEE SPINAL MUSCULAR ATROPHY)
 
SPAIN

 Update: Daniel C. Vilaseca Dreischer (Vol. 14, No. 2) 

 
SPEECH

Learning to Use a Speaking Valve (Vol. 24, No. 4)

Letter to the Editor (Vol. 18, No. 2)

Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)

Let's Hear It for Free Speech! (Vol. 13, No. 1)

Speak to Me ... Better! (Vol. 12, No. 4)

Speak to Me (Vol. 12, No. 3)

Tracheal Toilet and Speech (Vol. 10, No. 1)

The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2)

 
SPINAL CORD INJURY

I could sum it up in one word: Freedom (Vol. 29, No. 3)

Max Starkloff and the Fight for Disability Rights (Vol. 28, No. 6)

WHO Releases International Perspectives on Spinal Cord Injury (Vol. 28, No. 1)

"My Goal Now Is to Live ..." (Vol. 27, No. 4)

Ask The Experts (Vol. 25, No. 5)

Matt King is Pursuing His Dreams (Vol. 24, No. 5)

Home Is Best (Vol. 19, No. 2)

A Change of Plans (Vol. 17, No. 4)

Update: Inspiratory Muscle Training Study (Vol. 15, No. 2)

Respiratory Study with SCI Ventilator Users (Vol. 15, No. 1)

No Barriers in the New Millennium (Vol. 14, No. 2)

Computers – A Curse, A Blessing, A Necessity (Vol. 13, No. 1)

Computer Becomes Therapy, Link to World for Patient (Vol. 11, No. 2)

 

SPINAL MUSCULAR ATROPHY (SMA)
A Life Less Ordinary (Vol. 22, No. 2)

Truly Personal Attendant Care (Vol. 22, No. 1)

Spinal Muscular Atrophy Potpourri (Vol. 19, No. 1)

Life as a Teenager ... with a Ventilator (Vol. 19, No. 1)

Noninvasive to Trach Ventilation ... and Back Again (Vol. 17, No. 3)

Breathing and Pregnancy (Vol. 16, No. 4)

Living with SMA in Hong Kong (Vol. 16, No. 1)

 
SRI LANKA

Finding a Ventilator in Sri Lanka (Vol. 14, No. 1)

 
SUCTIONING

Tracheal Toilet and Speech (Vol. 10, No. 1)

The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2)

 
SPINAL CORD INJURY

"My Goal Now Is to Live ..." (Vol. 27, No. 4)

Needed: Independent Living for Ashly (Vol. 22, No. 1)

 
SURGERY

Hospital Experiences and Observations (Vol. 23, No. 1)

How My Vent and I Underwent Radiation Therapy (Vol. 21, No. 1)

Planning for Elective Surgery (Vol. 18, No. 4)

Sedation for Surgery (Vol. 17, No. 3)

 
SWALLOWING
Safe Straw Might Help You Swallow Through Thick and Thin (Vol. 28, No. 5)
 
SWEDEN

Adolf Ratzka Receives European Citizen Award (Vol. 23, No. 3)

Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)

Noninvasive to Trach Ventilation ... and Back Again (Vol. 17, No. 3)

Adolf Ratzka Honored (Vol. 13, No. 2)

 
SWIMMING/SCUBA DIVING

My Dream: Scuba Diving! (Vol. 18, No. 4)

The Ventilator Boat: Will It Float? (Vol. 18, No. 4)

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IVUN

4207 Lindell Blvd #110

Saint Louis,MO 63108-2930

314-534-0475

info@ventusers.org