IVUN

INTERNATIONAL VENTILATOR USERS NETWORK

 

an affiliate of Post-Polio Health International

CONNECTING

VENTILATOR USERS,

HEALTH PROFESSIONALS,

AND INDUSTRY

VENTILATOR-ASSISTED LIVING

PAST ISSUES BY TOPIC

ACID MALTESE DEFICIENCY

Pompe Disease Treatment (Vol. 22, No. 2)

Luke's Progress (Vol. 17, No. 1)

Living with Acid Maltase Deficiency (Vol. 10, No. 2)

Living with Pompe Disease (Vol. 10, No. 2)

 

ADAPTIVE EQUIPMENT

Simple Solutions (Vol. 27, No. 4)

Crafting in Cardboard (Vol. 22, No. 4)

 

ADOLESCENCE

Tubes Will Not Defeat Me (Vol. 29, No. 6)

Goal: Living as Independently as Possible (Vol. 29, No. 5)

Caring for Children with Rare Diseases: "NORMAL" is What You Make It

   Part 1: Our Family Situation/Experience (Vol. 29, No. 3)

   Part 2: The Solutions/Resolution and Ventilator-Assisted Living (Vol. 29, No. 4)

I could sum it up in one word: Freedom (Vol. 29, No. 3)

From Camper to Counselor at CHAMP Camp (Vol. 29, No. 2)

Surpassing the Teenage Trach Years (Vol. 22, No. 3)

Needed: Independent Living for Ashly (Vol. 22, No. 1)

Life as a Teenager ... with a Ventilator (Vol. 19, No. 1)

Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)

Supreme Court Rules in Favor of Teen Ventilator User (Vol. 13, No. 1)

 

ADVOCACY

New Rules for Pay of Home Health Care Workers (Vol. 27, No. 5)

"My Goal Now Is to Live ..." (Vol. 27, No. 4)

Carrie Lucas Fights for the Rights of Disabled Parents (Vol. 25, No. 5)

Help Eliminate Competitive Bidding (Vol. 23, No. 4)

Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)

IVUN's New Medical Advisory Committee Shares Its Views (Vol. 20, No. 2)

 

AGING

Take Charge, Not Chances: In Practice (Vol. 22, No. 1)

Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and Health Professionals (Vol. 21, No. 4)

Transition: From Middle Age to Elderly (Vol. 18, No. 1)

Aging and Respiratory Function (Vol. 18, No. 1)

Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)

Aging with a Ventilator: Independence or Security (Vol. 15, No. 4)

 

AIRWAY CLEARANCE

Airway Clearance and Lung Volume Recruitment for Individuals with Neuromuscular Disease (Vol. 25, No. 4)

Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

 

AMYOTROPHIC LATERAL SCLEROSIS (ALS)

From Around the Network (Vol. 23, No. 4)

From Around the Network (Vol. 22, No. 4)

The Research Fund/Final Report: Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis (Vol. 20, No. 4)

Living with ALS (Vol. 20, No. 2)

ALS Potpourri (Vol. 19, No. 1)

PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation (Vol. 18, No. 4)

Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)

My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

ALS Pulmonary Protocol (Vol. 14, No. 3)

A Happy Anniversary (Vol. 12, No. 4)

ALS Update/Jim Ballard (Vol. 12, No. 4)

Choosing Life, Even on a Ventilator (Vol. 10, No. 2)

 

ANESTHESIA (SEE SURGERY)

 

ARMBRECHT, SUSAN

Ave atque Vale! Remembering Susan Armbrecht, 1939-2009 (Vol. 23, No. 3)

 

 

ASK THE EXPERTS

Pulse oximetry (Vol. 26, No. 5)

Mouthpiece ventilation setup (Vol. 26, No. 4)

Ventilator settings (Vol. 26, No. 2)

Respiratory infections (Vol. 25, No. 6)

Spinal cord injury (Vol. 25, No. 5)

Chronic respiratory failure diagnosis (Vol. 25, No. 4)

Cuffed vs. uncuffed trach tubes (Vol. 25, No. 3)

Attendant care (Vol. 25, No. 2)

Sleep studies (Vol. 25, No. 1)

Bilevel vs volume ventilators (Vol. 24, No. 6)

Post-polio syndrome (Vol. 24, No. 5)

Weaning (Vol. 24, No. 4)

Getting a different ventilator: DME reimbursement (Vol. 24, No. 2)

Bilevel or volume-cycled ventilation (Vol. 24, No. 1)

Medication for bacterial infections (Vol. 23, No. 4)

 

ASSISTED LIVING/NURSING HOMES

What Adds to Quality of Life? My Story (Vol. 29, No. 1)

Assisted Living for Ventilator Users (Vol. 17, No. 4)

Home or Institution? (Vol. 17, No. 1)

Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)

Assisted Living for Ventilator Users (Vol. 13, No. 4)

 

ATTENDANT CARE

Program to Coordinate Helper Teams for HMV Users in East Denmark (Vol. 25, No. 6)

Ask the Experts (Vol. 25, No. 2)

From Around the Network (Vol. 22, No. 3)

Truly Personal Attendant Care (Vol. 22, No. 1)

Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

Emergency Respite Care (Vol. 20, No. 1)

 

AUSTRALIA

I could sum it up in one word: Freedom (Vol. 29, No. 3)

Victorian Respiratory Support Service (Vol. 25, No. 4)

Australian Paediatric Ventilator Program (Vol. 14, No. 3)

 

BACTERIAL INFECTIONS

Ask the Experts (Vol. 23, No. 4)

Dealing with Bacterial Infections (Vol. 22, No. 2)

 

BECKETT, KATIE

Mary Katherine "Katie" Beckett, 1978-2012 (Vol. 26, No. 3)

 

BI-LEVEL PRESSURE SUPPORT SYSTEMS

Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 6)

Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 1)

Bilevel or volume-cycled ventilation? (Vol. 22, No. 4)

From Around the Network (Vol. 22, No. 1)

Bilevel Ventilation (Vol. 21, No. 2)

Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)

Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2)

Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)

My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)

Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)

Conversions: Pressure-Limited to Volume Ventilator (Vol. 12, No. 3)

Which Ventilator to Use? (Vol. 12, No. 2)

Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)

Adapting to Masks and BiPAP® (Vol. 11, No. 2)

 

BIPHASIC CUIRASS VENTILATION

Biphasic Cuirass Ventilator and the United Hayek RTX Ventilator (Vol. 27, No. 6)

The Road to the RTX (Vol. 27, No. 4)

Kaine Rodriguez (Vol. 24, No. 5)

 

BIRD, FORREST

Forrest Bird Honored (Vol. 22, No. 4)

 

BODY BRACE

Body Brace (Vol. 16, No. 4)

 

BPD (SEE BRONCHOPULMONARY DYSPLASIA)

 

BRAUN, NORMA

All-Too-Typical Email to IVUN (Vol. 28, No. 6)

Norma Braun Congratulations (Vol. 26, No. 5)

 

BRAZIL

The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)

Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

Home Mechanical Ventilation: A Brazilian Experience (Vol. 15, No. 4)

 

BREATHING (SEE HYPOVENTILATION)

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IVUN

50 Crestwood Executive Ctr, Ste 440

Saint Louis,MO 63126-1916

314-534-0475

info@ventusers.org