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an affiliate of Post-Polio Health International






Content of International Ventilator Users Network's newsletters

The individuals who write articles and stories for the IVUN's newsletters donate their services. The major medical articles are written by health professionals and reviewed by another health professional expert in the topic.


For example, James C. Agre, MD, PhD, or Gunnar Grimby, MD, PhD, would review an article about exercise for the survivors of polio. Augusta Alba, MD, or John R. Bach, MD would review articles relating to breathing problems. Medical questions and concerns about scope and content are resolved with advice from Board members with medical and clinical experience.

The articles are edited so that "people first" language is used. For example, uses a wheelchair is used; wheelchair-bound is not. Other examples include the preferred use of ventilator user or ventilator-assisted (not on a ventilator or ventilator-dependent), person with a disability (not handicapped), and polio survivor or survivor of polio (not victim).

The editors screen all materials (including books, videos, CDs, etc.) received, and exclude those that are not consistent with IVUN's philosophy and those not considered medically sound, of dubious content, or of questionable validity. The content is also nonpartisan and nonsectarian.

Want to submit an article to Ventilator-Assisted Living?


IVUN is interested in any article that highlights, promotes or discusses practical information, procedures and policies that encourage the independent living of the users of home mechanical ventilation. IVUN is very interested in articles from other countries.


We suggest you submit a brief outline of your proposed article to After review and discussion, specific content, length of article, and deadline will be established.


In general articles are requested to be 500, 1000, 1500, 2000 words long. Photographs and references are requested. Photographs may be mailed or provided in digital form as jpg files with a minimum resolution of 300 ppi. It is preferable to not reduce the physical size of the photos.

Content of

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IVUN's executive director, Brian Tiburzi, oversees the content of the IVUN website. Please send your comments to him at

All of the material on this site is for informational purposes of the reader and is not intended to replace professional medical assistance.

The majority of the post-polio information on the site has been published in Ventilator-Assisted Living (formerly IVUN News).

Link Policy and Disclaimer

Link Policy

Information found on

The materials and websites referenced and/or linked from IVUN's website are provided for information purposes only. The linked sites are not under the control of International Ventilator Users Network (IVUN), and IVUN does not assume any responsibility or liability for any communication or materials available at such linked sites. Any reference to a commercial or noncommercial product, process, service or company is not an endorsement or recommendation by IVUN.

If you would like your material to be considered for placement on at a location deemed appropriate by IVUN, please send an email request to, with the following information:

  • URL, if requesting a link

  • Brief description of the content of the website

  • Explanation how your information fulfills IVUN's mission

  • Cost of your information or if it is free

All submissions will be reviewed by IVUN against our criteria. At IVUN's discretion, you may be required to submit more detailed information.

Links to

Thank you for your interest in linking to Your assistance in helping IVUN raise awareness of the needs of users of home mechanical ventilation and polio survivors is greatly appreciated. If you want to link to, we ask that you comply with the following guidelines:

Any text-only link must clearly be written as "International Ventilator Users Network" or "International Ventilator Users Network, an affiliate of Post-Polio Health International" or, if linking to the International Ventilator Users Network section, the wording must be "International Ventilator Users Network."

International Ventilator Users Network's logo is unique to the organization, and IVUN requests that its use by restricted to IVUN unless written permission is received from IVUN. If you would like to display a logo-based link, please send a written request, with your website's url, to

Do not incorporate any content from IVUN into your website through in-lining, framing or creating border environments around IVUN content.

Your website must not present false information about IVUN's mission or services.

Do not present the link to IVUN's website in any way suggesting that IVUN has a relationship or affiliation with your site or that IVUN endorses your site, products or services.

Your website should not use insensitive language and/or negative portrayals of people with disabilities. Guidelines are found at

Your website should not contain content that could be construed as distasteful, offensive or controversial.

The information on the website may not be published, broadcast or otherwise distributed without the prior written authorization of International Ventilator Users Network (IVUN).

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